• Home
  • Geriatrics Blog
    • Helping Older Parents Posts
  • Helping Older Parents
    • Free Trainings
    • Newsletter
  • Podcast
    • Better Health While Aging Podcast
    • Helping Older Parents Podcast
  • Testimonials
  • About
    • About Better Health While Aging
    • About Leslie Kernisan, MD MPH
  • Courses & More

Better Health While Aging

Practical information for aging health & family caregivers

  • Popular Topics
    • Preventing Falls in Aging Adults
    • Medication Safety
    • Dementia, including Alzheimer’s
    • Advance Care Planning & End-of-Life
  • Why Geriatrics
  • Are you a caregiver?
  • How to use this site

10 Things to Know About HIPAA & Access to a Relative’s Health Information

by Leslie Kernisan, MD MPH

Depositphotos_71539567_m-2015-HIPAA-compressor

Have you ever had questions about what might be going on with an older loved one’s health? But then you find that your older relative is unable — or unwilling — to let you in on the health details?

Or maybe you’ve wanted to talk to your parent’s doctor, but worried that doing so might be a HIPAA violation?

Such issues come up often for the family caregivers of aging adults. Common situations include:

  • An older parent who starts to act in ways that are strange or worrisome, such as becoming paranoid or delusional.
  • An older adult who seems to be physically or mentally declining, but seems reluctant to discuss the situation
  • A hospitalization or emergency room visit
  • A hospitalized older person becoming confused (this would be delirium) and becoming no longer able to explain to family what the doctors have said

In these situations, family caregivers often find themselves grappling with issues related to the HIPAA (Health Insurance Portability and Accountability Act) Privacy Rule.

Why all the grappling?

Well, although most people — and all clinicians — have heard of HIPAA, its rules and requirements are often misunderstood. So for instance, families may assume that it’s a HIPAA violation to report a relative’s worrisome behavior to the doctor, because their relative hasn’t given them permission to do so.

Even worse:  doctors and other clinicians sometimes refuse to disclose any information to families, and will incorrectly claim that it’s a HIPAA violation to do so. This can create extra confusion and stress for families, or can even sometimes put an older person at risk for harm.

If you’ve been concerned about an aging parent’s health, or are otherwise helping someone with their health concerns, then it can be very helpful to understand HIPAA better. HIPAA regulations will also govern your access to medical records and other important health information.

In fact, the American Bar Association includes “Know your rights of access to health information” among its Ten Legal Tips for Caregivers.

The detailed ins and outs of HIPAA can indeed be hard to fully understand. But, it’s not too hard to learn some practical basics, especially since the US Department of Health and Human Services (HHS) provides a Summary of the Privacy Rule here, and maintains a truly useful set of online FAQs about HIPAA here.

In this article, I’ll explain five useful key basics to help you understand HIPAA better, especially when it comes to getting information and medical records as a family caregiver.

I’ll also address five questions I’ve often heard family caregivers ask about HIPAA.

At the end, I’ll share some of my favorite online HIPAA resources, as well as some final tips to keep in mind.

5 Key Basics About HIPAA

[Read more…]

Filed Under: Aging health, Geriatrics For Caregivers Blog, Helping Older Parents Articles Tagged With: HIPAA

Yours Free: The Quick Start Guide to Checking Older Parents for Health & Safety Problems

Action Plan - Pencil and Checklist

Enter your email to download this free Quick Start Guide

Get The Guide Now »

No spam ever! We collect, use and process your data according to our Privacy Policy.

Find It Here

Disclaimer

The material on this site, including any exchanges in the comments section of the blog, is for informational and educational purposes only.

Any comments Dr. Kernisan may make regarding an individual’s story or comments should not be construed as establishing a physician-patient relationship between Dr. Kernisan and a caregiver, or care recipient.

None of Dr. Kernisan’s website or group information should be considered a substitute for individualized medical assessment, diagnosis, or treatment.

Please see the full Disclaimer for more information.

Please also carefully read our Terms & Conditions of Use, before using this site.

Creative Commons License
This work by Leslie Kernisan MD & Better Health While Aging LLC is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
Based on a work at BetterHealthWhileAging.net.

Privacy Policy & Disclosures

Your privacy is very important to us. Your information will never be sold to anyone, whether you browse the site, sign up for email updates, or register for an event.

Pleae read our complete Privacy Policy for more information and for Dr. Kernisan's financial disclosures.

© 2025 Better Health While Aging, LLC · Terms & Conditions · Disclaimer · Privacy Policy · Contact Us